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SHARED study (Services after Hospital: Action to develop REcommenDations)

SHARED: Services after Hospital: Action to develop REcommenDations

Funder: NIHR- Research for Patient Benefit: £238k

Start date: January 2014 End date: December 2015

CI: Carole Mockford (Warwick)

Collaborators: Carole Mockford (Warwick), Kate Seers (Warwick), Sophie Staniszewska (Warwick), Jan Oyebode (Bradford), Matt Murray (Alzheimer’s Society), Rashida Suleman (UNTRAP), Rosemary Clarke (UNTRAP)

Description: Up to 70% of acute hospital beds are occupied by older people and it is estimated that around 40% of these have dementia, many without a formal diagnosis. Recent reports have shown that there is no clear pathway for patients with dementia or their carers when they leave hospital. Families can face many difficulties when health and social care services do not work together, or as expected, and staff may not know how to overcome this. Every hospital has a discharge policy involving the single assessment process potentially enabling health and social care services to provide seamless services but several reports have found major gaps in the hospital discharge process. There is, and has been, substantial lay input into this study at all stages of the research cycle.

This study aims:

· To develop carer and patient-led recommendations for services to enable smooth transition for people with dementia from hospital care to home care which will be disseminated to hospital and social care professionals involved in hospital discharge planning.

· To explore the experiences of carers and people with dementia of service provision from hospital discharge, at 6 weeks (when free intermediate care, if available, stops), and 12 weeks post-discharge, what works well and what can be improved.

· To assess the enablers and barriers to providing good discharge planning by health and social care professionals, including the availability and uptake of services.

· To ascertain the involvement of carers and people with dementia in decision-making around service provision at, and after, hospital discharge.

Progress: Data collection is complete. Analysis has been conducted and emerging themes identified by the lay co-researchers, have been developed into 12 key statements. The statements were presented to study participants at a focus group on 27th August 2015 and using the nominal group technique, facilitated by lay co-researchers, these were further developed into draft recommendations. Health and social care professionals who were also study participants have a copy of the draft recommendations and will be offering their feedback. A further focus group/consensus meeting is planned for 29th October to finalise the recommendations. Two papers are currently underway and others are planned.

Publications:

Peer reviewed paper: Mockford C. (2015) A review of family carers’ experiences of hospital discharge for people with dementia and the rationale for involving service users in health research. Commissioned paper for Journal of Healthcare Leadership June 2015: 7: 21-28

Accepted for oral presentation: Mockford C, Seers K, Staniszewska S, Murray M, Suleman R and Clarke R (2015) [title] Oral Presentation DementiaUK Congress annual conference 5th November 2015 Telford International Centre.

Accepted for oral presentation with lay researchers: Mockford C, Boex S, Diment Y, Grant R, Leach J and Sharma U (2015) Services after Hospital: Action to develop REcommenDations: SHARED results. Division of Health Sciences seminar, Warwick Medical School, University of Warwick 26th November 2015

Oral presentation and discussion with lay researchers: Mockford C, Boex S, Diment Y, Leach J and Sharma U (2015) A study SHARED. Services after Hospital: Action to develop REcommenDations. Qualitative Methods Interest Group Dept of Health Sciences Warwick Medical School Sept 2015

Oral presentation with lay researchers: Mockford C, Boex S, Diment Y, Grant R, Leach J and Sharma U (2015) A study SHARED. Services after Hospital: Action to develop REcommenDations. Division of Health Sciences seminar, Warwick Medical School, University of Warwick 9th July 2015

Oral presentation: Mockford C, Seers K, Staniszewska S, Murray M, Suleman R and Clarke R (2015) SHARED study: Services after Hospital: Action to develop REcommenDations. Alzheimer’s Society annual research conference Manchester June 2015

Poster presentation: Mockford C, Seers K, Stanisewska S, Oyebode J, Murray M, Suleman R and Clarke R (2014) SHARED: Services after Hospital: Action to develop REcommenDations

Alzheimer’s Society research conference 3rd July 2014 Eastwood Hall, Nottingham.

Mon 19 Oct 2015, 08:41